UPDATE 12/05: Sorry there haven’t been many updates. I’ve been catching up on the home front in Prosser. Now, I am back in Seattle for a couple days. We’ve made good progress with mom and she is testing out her new home today. Hopefully, it will work for her.
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UPDATE 12/02: (oops, put the wrong update-date on this) We stayed with mom through yesterday (Wednesday), then returned home. On Tuesday night, I started coming down with what I believe is some kind of flu (tested negative for covid), so thought I should go home. Ann followed me home a little later. Meanwhile, my aunt found mom a 24/hour elder-home run with a limited number of tenants run by a nurse that is just a few minutes from my aunt’s house; it sounds like a nice place for mom to stay for a while. It is by no means cheap, but they take and accompany her to doc appointments and offers a doctor that will make visit the house. All this will relieve huge burdens on all of us.
Several times during the past few days mom didn’t know where she was. When I brought her back from the hospital on Friday (and I won’t get into how difficult it was to get her into the truck at the hospital), I wheeled her into the house, then the kitchen. She slowly stood up with my help and using her walker, then shuffled towards a back glass door that leads to the back deck. I asked where she was going. She said she was trying to figure out how to get into the house. I said we were in the house. She then asked how she could get to the kitchen. I told her we were in the kitchen. Eventually, she got her bearings. But, these moments of confusion, of having no idea where she was at while in her home of 55 years, happened multiple times over the past few days.
Today, I feel better, but don’t feel 100%. So, I’m on bedrest.
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(11/30/2021) Our quick 2 day jaunt to Seattle on Friday has turned into much longer stay. So, things remain on hold on the jeep side of things.
Mom wasn’t taking her LASIX regularly, which led to absorbing water and puffing up. So, not long after we arrived, we were off to the hospital. She stayed two days there, where they managed to get her fluid levels down, but even with lasix and Spiro (short for another drug that helps eliminate water build-up), her heart isn’t keeping up. So, we have her on some bed rest in the hopes we can lower some of the new swelling (not as bad as she was Friday).
Making predictions on how this will play out is difficult. But, one of the best pieces of wisdom we got from one of Ann mother’s doctors was that if the patient’s health decline is over months, the patient likely has months left; if the decline is over weeks, she likely has weeks left; if the decline is over days, she likely has days left. We believe we are well into the weeks category and will plan accordingly.
One the interesting note I read the other day was from a hospice nurse of 6 years, with also 9 years of ICU experience. She said that often folks who are about a month away from passing will imagine seeing or talking with loved ones who have passed or beloved pets, I found it an interesting read, one that’s been consistent with our experiences: https://people.com/health/hospice-nurse-goes-viral-on-tiktok-for-talking-about-patients-final-moments-before-death/
